Tag Archives: medical aid in dying

Medical Aid in Dying – Sad Victory

Another trip to Trenton. (See my posts of  February 12 and 21 of 2019.) On March 25, both the New Jersey Senate and Assembly voted on a bill to allow a doctor to prescribe lethal medication for self administration by a mentally competent adult having (in the opinion of two doctors) less than six months to live. Polls show that 60% of New Jersey residents want this change in our law.

How did I spend my day? I was one of perhaps 25 supporters working under the banner of a national organization called Compassion and Choices. We made our presence obvious by wearing the organization’s distinctive yellow t-shirts. Some of us carried signs.

Opponents to the legislation wore recognizable lapel badges. Who are they? (I can’t answer this in detail.) I think they are people who believe that medical science can control pain. Some are doctors. Some seem to be religiously/morally motivated – Catholics and (orthodox?) Jews. Most poignant, some are citizens with handicaps who fear that Aid in Dying will lead to involuntary euthanasia of people judged to be “defective”. It seems to me that this “slippery slope” argument requires very careful analysis, and the concerns of the handicapped must be scrupulously protected. In this territory, the public policy making is far from complete.

Initially we lurked in the crowded basement of the New Jersey State House Annex, wanting our support to be visible to the legislators. The noise and crowding were extreme. Sometimes the two sides of the Aid in Dying issue came face to face. I was walking up a ramp, supporting a lady much older and more frail than I am, both of us moving carefully. We came face to face with an opponent to our position, a huge man dressed in black whose argument consisted of “how can you possibly?…” and “every soul is sacred”. I slowed him slightly with “what about my right to make the decision to end my own pain?” or something like that. Then I handed him my one page statement (see previous post) and asked that he read it. The crowd pushed us apart.

Much was under consideration in Trenton on March 25…

  • medical marijuana
  • recreational marijuana
  • teachers’ benefits and salaries
  • high school football
  • driving rights?
  • dozens of obscure-to-me bills

We waited – in the corridor, the cafeteria, the two legislative chambers…

Compassion and Choices warned us that, in the legislative chambers, we would hear distressing statements, exaggerations, untruths… We were asked to stay calm and refrain from calling out (which violates the rules), although opponents might do so. Yes, all of that happened. It was hard. Procedural issues came up – we thought the Bill was tabled, which would have been bad, but suddenly it was back. Only one assembly person spoke with what I would call the “voice of reason”. I think almost all legislators were committed beforehand. And a few were waging a passionate battle in opposition.

After the vote, most of “the opposition” drifted away from us, but a young man took out his cell phone and announced that he wanted “pictures of the Nazis”. That’s what he called us. We tried to ignore him and shelter the woman he approached most closely, a fragile cancer patient. Somehow we all got out of there.

Looking at the smiles and high fives exchanged after the legislation passed first the Assembly and then the Senate, and at the pictures posted on social media, an observer think the pro-Aid in Dying group was happy about its victory. But underneath this was very profound sadness. Most of the supporters of Aid in Dying (based on my experience) are women who are or have been caregivers. In formal testimony, there were repeated references to “my husband”, “my mother”, “my sister”, “my best friend”. Most (but not all) of these loved ones suffered from cancer and experienced terrible pain. A few people were advocating on their own behalf, in anticipation of uncontrollable pain. Four (possibly more) members of our group are plainly seriously ill – three using oxygen, one in a wheel chair. They were among the more emotional of the participants. I talked with a composed and apparently healthy woman suffering from a rare genetic liver disorder. There is no treatment available. She is fortunate to even have a diagnosis. Her quality of life may deteriorate at any time. If that happens, she wants to choose the time of her own death.

I was relieved when the Governor signed the Bill into law. A few months will be required to set up regulations for implementation. How soon will this be an issue which is about ME? Or some dear friend? God grant me wisdom…

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Why I Support Medical Aid in Dying

I went to Trenton on February 7, 2019, to support legislation that would, under certain conditions, permit a doctor to prescribe lethal medication for self administration by a mentally competent adult. Knowing testimony would be limited to two minutes, I wrote the following:

I am testifying in support of this legislation because of my experience at the bedsides of two dear friends, Carol Slocum who died of pancreatic cancer in 2010 and Mary Hunt who died of lung cancer in 2014. I regret to say that each of them suffered from severe pain.

What I saw led me to conclude that pain control is not an exact science and that the promise offered by hospice of a calm and painless death is an illusion. Medications and supportive services help some people, some of the time. High dose morphine controls pain at the expense of meaningful awareness. Drugged oblivion would not be my choice.

Mary Hunt wanted medical aid in dying and repeatedly expressed to me her anger and frustration that the laws of the State of New Jersey prevented her from having meaningful control over her impending, inevitable death.

I am currently blessed with good health, but I know how quickly that can be swept away. If I am ever as sick as my two friends were, I want the right to end my suffering. I would want to have a legally prescribed, lethal drug in my possession. I consider Aid in Dying for the Terminally Ill to be a compassionate and humane policy.

Alone in my car on the way to Trenton, the memory of other deaths intruded into my consciousness. FOUR MORE cancer deaths in the past decade, among my closest friends. Cancer of the lung, breast, uterus, ovaries. (Dozens, of course, if I draw a wider circle.)

It’s a wonder I even got to Trenton. I wanted to pull off the road and cry.

Among these six personally devastating deaths, what did I see? ONE case that I would characterize as a “good death”, the kind hospice hopes to provide – safety, comfort and loving company. Another was about 50% “good”. The others? All kinds of problems.

  • Isolation.
  • Hasty, inappropriate medical interventions.
  • Lack of support for both patient and family.
  • Pain.
  • Uncertainty.

MY SIX FRIENDS WERE MIDDLE/UPPER CLASS PEOPLE WITH GOOD HEALTH INSURANCE. Their families were reasonably sophisticated about hospitals and medical specialists.

I simply can’t imagine what it’s like for people with no insurance. Or no money. Or few friends. Or poor English.

I’m concerned about the emphasis on PAIN as a criterion for aid in dying. How much do I have to suffer for YOU (who oppose this legislation, and/or the State of New Jersey) to be comfortable with my decision to die?

What about my right to make the important decisions about my life? At what point should it be taken from me? Medically, our ability to keep people alive far outstrips our ability (and willingness) to support QUALITY of life.